Clinical trials for hemophilia are essential to advance medical knowledge and develop treatments. But for decades, trials related to hemophilia enrolled only men, given the assumption that women were only carriers of the disease. Consequently, women with the disorder were denied the opportunity to participate in trials that could potentially enhance their quality of life. […]
Incidences of bleeding from playing sports are rare among people with hemophilia, and more likely to occur in those with lower levels of clotting factors — proteins that play a key role in promoting blood clotting — a study in the Netherlands has found. More specifically, the study reveals that patients with clotting factor activity […]
Federal Updates: HELP Copays Act: While S. 1375 was tabled during the May Senate Health Education Labor and Pensions Committee markup on PBM’s, the bill is up to eight cosponsors. NHF continues to solicit Members of Congress to cosponsor S. 1375 and HR 830. HR 830 has forty cosponsors to date. NHF staff met with […]
Lawmakers in May devoted close attention to the role that pharmacy benefits managers (PBMs) play in our health care system. PBMs are middlemen that create and administer drug formularies on behalf of health insurers, self-insured employers, Medicaid, and other payers. PBMs choose which drugs a plan will cover, negotiate drug prices on behalf of payers, […]
Weekly treatment with the experimental therapy marstacimab (PF-06741086) was found to significantly reduce bleed rates for adult and adolescent hemophilia A and B patients without inhibitors relative to standard therapies. In so doing, it met the main goal of the pivotal Phase 3 BASIS clinical trial, designed to evaluate the treatment’s effectiveness in preventing bleeds […]
The power of music cannot be underestimated. Its universality has the ability to connect people across places and cultures. Many people also find music healing. They can find solace in lyrics and melodies that evoke pleasant emotions or that mirror their emotional states. Why does this happen? Music activates particular structures in the brain involved […]
Note: This column describes the author’s own experiences with Mounjaro (trizepatide). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Confession time. Since November, I’ve been injecting the medication Mounjaro (trizepatide) once a week to help me lose weight. It’s a prescription medication used to treat […]
A 48-year-old man with severe hemophilia A developed a rare intramural hematoma with blood leaking into one of the layers of the intestine wall that was successfully treated with an early infusion of the missing blood clotting factor, a recent case report described. Prophylactic treatment prevented its recurrence. A review of the literature suggests intramural […]
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