Can you live a normal life with hemophilia?

A bleeding ailment known as hemophilia affects more than 400,000 people globally. It is brought on by a lack of one of the proteins called clotting factors, which aid in blood clotting. People who have hemophilia are therefore susceptible to severe bleeding, which may be fatal.

More than half of hemophiliac patients conceal their symptoms, even from their physicians, according to a recent study. Researchers from the University of California, San Diego conducted the study, which was published in the journal Hemophilia.

More than 2,700 hemophilia patients, caregivers, and medical professionals from around the globe participated in the study’s survey. The most frequent explanations given by patients to conceal their symptoms, according to the researchers, were:

  • Feeling like a burden to others
  • Fear of prejudice
  • Embarrassment
  • A desire to avoid worrying about their loved ones

Additionally, the study discovered that patients who concealed their symptoms had higher rates of social isolation, anxiety, and sadness.

Why is this taking place?

There are several reasons why people with hemophilia might choose to conceal their symptoms. A fear of stigma or discrimination may exist in some patients. Others could experience shame or embarrassment in their situation. Certain patients could feel burdensome or not want to bother their loved ones.

Why is it crucial that persons with hemophilia tell their physicians about their symptoms?

For hemophiliac patients to obtain the best care possible, it is crucial that they tell their doctors about their symptoms. Hemophilia is a complicated illness for which there are several therapeutic approaches. Through a thorough understanding of each patient’s unique symptoms and requirements, medical professionals can create a customized treatment plan.

How can one proceed?

The results of this study show how important it is for medical professionals to establish a secure and encouraging environment where people with hemophilia can talk about their problems. Patients should be taught by healthcare professionals the value of sharing their symptoms with others for their own health and well-being.

Combating the stigma attached to hemophilia is also crucial. Although hemophilia is a chronic illness, it is one that can be treated. Hemophiliacs are capable of leading busy, fulfilling lives.

It’s crucial to keep in mind that you are not alone if you have hemophilia. You can live a full and healthy life and manage your illness with the support of a wealth of services. Discuss your worries with your physician, and if necessary, get assistance.

Here are some more suggestions for those with hemophilia:

  • Look for a medical professional who specializes in treating hemophilia.
  • Become a member of a support group for families and individuals with hemophilia.
  • Become knowledgeable about hemophilia and the most recent therapies available.
  • Tell your loved ones the truth about your illness.
  • Never hesitate to ask for assistance when you need it.

Recall that although hemophilia is a chronic illness, it is one that may be treated. With hemophilia, you can lead a full and active life.