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The Long and Winding Road
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Hemophilia in women
The Long and Winding Road
Hemophilia is for Girls: The Long and Winding Road
The Long and Winding Road
So, heres what has been going on with me. Back in November I started having black stools. I went to the doctor and my blood work showed my Iron and Hemoglobin had dropped. I went to the emergency room, waited 15 hours and got 4 units of Octaplasma. I thought that was the end of it. However, Christmas eve I woke up with strep throat, another visit to the doctor showed my hemoglobin had dropped again. I went back to emergency, waited 12 hours and got more octaplasma. This exact same scenario when on again in January and February.
So far I have had an EKG, Ultrasound and Endoscopy. Everything came back normal which is good but it does not explain why my levels keep dropping.
So to sum it up since November I have been feeling tired and out of breath. I am getting so tired of not feeling well but no one has a magic fix. What I think is happening is I am having a small bleed somewhere in my upper GI tract and its causing these drops in my levels so I continue on with my weekly blood work and pray they start to go up.
I am forever grateful to my amazing friends and family who lift my spirits while I try and get better!
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